Groupe d'Etude en Oncologie du Quebec

Titre	Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry
Protocole ID	Registre PNH (M07-001)
ClinicalTrials.gov ID	NCT01374360
Type(s) de cancer	Hémato/Greffe
Phase
Type étude	Autre
Institution	CISSS DE CHAUDIERE-APPALACHES HOTEL-DIEU DE LEVIS 143 rue Wolfe, Lévis, QC, G6V 3Z1
Ville	Beauceville
Investigateur(trice) principal(e)	Dre Danièle Marceau
Coordonnateur(trice)	Pierre Bédard 418-835-7121
Statut	Actif en recrutement
Date d'activation	26-10-2023
Critètes d'éligibilité	Patients of any age, including minors, with a diagnosis of PNH or a detected PNH clone, including patients previously treated with Soliris and withdrawn from treatment. (Subjects under the age of eighteen years must have parent/legal guardian consent. Upon turning eighteen years of age, these subjects must be re-consented). Ability to comprehend and sign consent to have data entered in the PNH Registry.
Critètes d'exclusion

Groupe d'étude en oncologie du Québec