Titre Health Related Quality of Life (HRQL) and Symptom Assessment in Patients Diagnosed With Diffuse Intrinsic Pontine Glioma (DIPG) or Recurrent and Re-irradiated Brain Tumours and Their Caregivers: A Non-Therapeutic Study
Protocole ID DIPG HRQOL
ClinicalTrials.gov ID NCT04670016
Type(s) de cancer Pédiatrique divers
Phase Autres
Type étude Autre
Institution CHU DE QUEBEC – UNIVERSITE LAVAL
   CHUL ET CENTRE MERE-ENFANT SOLEIL
      2705 boulevard Laurier, Québec, QC, G1V 4G2
Ville Québec
Investigateur(trice) principal(e) Dre Valérie Larouche
Coordonnateur(trice) Panagiota Giannakouros
 418-525-4444 poste 40121
Statut Actif en recrutement
Critètes d'éligibilité
  • Patient aged >2 and <21 years treated with a repeat course of radiation for DIPG or other recurrent or progressive brain tumour.
  • Radiation for the first tumour must be a primary brain neoplasm (i.e. not leukemia).
  • Enrollment within 14 days of starting re-irradiation (RT2).
  • Patients with malignant transformation of the first tumour are eligible.
  • There are no restrictions on histology or RT1/RT2 dose-fractionation or RT2 body site. In other words, RT2 may be directed at a different location to RT1.
  • The patient is treated at a site where the study is approved by the local ethics board
  • Consent, and, if applicable, assent, has been obtained according to institutional standards
Critètes d'exclusion
  • Inability to complete questionnaires in English or French.