Groupe d'Etude en Oncologie du Quebec

Title	Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry
Protocole ID	Registre PNH (M07-001)
ClinicalTrials.gov ID	NCT01374360
Cancer Type(s)	Hemato/Graft
Phase
Stage
Study Type	Other
Drug
Institution	CISSS DE CHAUDIERE-APPALACHES HOTEL-DIEU DE LEVIS 143 rue Wolfe, Lévis, QC, G6V 3Z1
City
Principal Investigator	Dr. Danièle Marceau
Coordinator	Pierre Bédard 418-835-7121
Status	Recruiting
Activation Date	26-10-2023
Eligibility Criteria	Patients of any age, including minors, with a diagnosis of PNH or a detected PNH clone, including patients previously treated with Soliris and withdrawn from treatment. (Subjects under the age of eighteen years must have parent/legal guardian consent. Upon turning eighteen years of age, these subjects must be re-consented). Ability to comprehend and sign consent to have data entered in the PNH Registry.
Exclusion Criteria

Groupe d'étude en oncologie du Québec